Resources
This is a curated list of trusted organizations that offer education, advocacy, and support for caregivers and individuals with disabilities. These are here as starting points, not requirements. Take what helps and leave the rest.
Don't forget to grab a copy of our printable Caregiver Checklist! Get it here.
General Disability & Caregiver Support
The Arc of the United States
https://thearc.org
Advocacy, legal resources, local chapters, and family support for individuals with intellectual and developmental disabilities.
Easterseals
https://www.easterseals.com
Therapy services, respite care, and inclusive community programs for people with disabilities and caregivers.
Family Voices
https://familyvoices.org
Peer support, care navigation, and advocacy for families navigating complex healthcare needs.
Parent to Parent USA
https://www.p2pusa.org
Emotional support through trained parent mentors who understand the caregiving journey.
National Organization for Rare Disorders
https://rarediseases.org
Condition databases, patient assistance programs, and advocacy for rare and complex diagnoses.
Condition-Specific Resources
Down Syndrome
National Down Syndrome Society
https://ndss.org
National Down Syndrome Congress
https://www.ndsccenter.org
Education, advocacy, family guides, and community support.
Autism
Autism Speaks
https://www.autismspeaks.org
Autistic Self Advocacy Network
https://autisticadvocacy.org
Toolkits, transition resources, and neurodiversity-centered advocacy.
Cerebral Palsy
United Cerebral Palsy
https://ucp.org
Assistive technology, family support, and employment resources.
Epilepsy
Epilepsy Foundation
https://www.epilepsy.com
Seizure action plans, education, and local chapter support.
Spina Bifida
Spina Bifida Association
https://www.spinabifidaassociation.org
Clinical care guidance, transition planning, and peer support.
Learning & Neurodiversity Support
ADHD
CHADD
https://chadd.org
Education, webinars, and school and workplace tools.
Autism
Autism Speaks
https://www.autismspeaks.org
Autistic Self Advocacy Network
https://autisticadvocacy.org
Toolkits, transition resources, and neurodiversity-centered advocacy.
Dyslexia
International Dyslexia Association
https://dyslexiaida.org
Parent guides, teacher resources, and evidence-based education.
Deaf, Hard of Hearing, Blind, and Low Vision Support
National Association of the Deaf
https://www.nad.org
Legal advocacy and ASL accessibility resources.
Hearing Loss Association of America
https://www.hearingloss.org
Peer support and technology access.
American Foundation for the Blind
https://www.afb.org
Education, employment tools, and policy advocacy.
National Federation of the Blind
https://nfb.org
Scholarships, technology training, and family support.